Autism's Parent Trap - New York Times: "IN recent weeks, three stories have hit the news with grimly similar plotlines: parents accused of killing their autistic children.
Chilling words to any parent of a child with autism who remembers, as I do, reading every book, pursuing every lead and never taking a night off — because autism feels like a war you re-arm yourself nightly to wage. The comments suggest the parents may have been trying too hard. Perhaps they were frustrated that their efforts did not lead to greater improvement in their children. That would not be surprising, because dramatic improvement is what too many parents are led to expect.
Clearly there is a message in the recent deaths about the urgent need to increase support for the rising number of families struggling with autism. Having an autistic child is estimated to cost a family $10,000 to $50,000 a year in out-of-pocket expenses for medical treatment, therapy and education. With 50 new diagnoses of autism in this country every day, support services are already too stretched to meet the need.
If you commit all your time, your money, your family's life, recovery is possible. And who wouldn't do almost anything — mortgage a home, abandon a career or move to be closer to doctors or schools — to enable an autistic child to lead a normal life?"
Cammie McGovern is the author of "Eye Contact," a novel.
Monday, June 05, 2006
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